Sep 11, 2011

Here we go... again.

Life has done a bit of a lurch lately. Nothing dreadful, but still a lurch...

EJ has been regressing, quite steadily since starting school. Meltdowns are a daily occurrence once more and there are certain "traits" that have been becoming more and more prominent the older he becomes. Daz and I have been worried about him and have been hoping that he would settle back down and go back to his "normal" self.  9 months on and he is not anywhere near back to where he was. We WERE waiting for him to settle down again before taking him to the speech therapist, because he doesn't learn well when over-stimulated. We felt like we couldn't wait much longer so I took EJ to the speech therapist to get him assessed again and to see what speech therapy he will need. It turns out his speech has done very well, and he will only need a handful of sessions. Although he has some short term memory problems (this explains why he never does what I tell him repeatedly to do!) and will promptly forget things very quickly. He needs visual aids to remind him of things. My house is starting to become covered in signs for EJ! LOL
The speech therapist recommended getting him assessed for Aspergers. Suddenly things started making sense. Lack of eye contact, no hand gestures (you have to work hard to get him to point at something) obsessive behaviour, shutting down in social situations, poor social skills..... and the list goes on. I took him to the paediatrician and he strongly recommended assessment for Aspergers. So we are back to square one again, going through assessments and waiting on waiting lists for help. Thankfully with Autism SA, there is only 8-10 weeks to wait.

SPD is very similar to Aspergers, so there shouldn't be a huge adjustment to make - although on the upside there is SOOOO much more support and services available for Aspie kids. That will be good for him.   


Bron said...

Ahh the journey is a long one hun. I run a page on FB called Autism Spectrum Disorder Families in SA... so head over and say Hi :) It's about supporting families, you don't have to necessarily tick all the ASD boxes.

Melissa said...

I don't know why, but I thought he'd already been diagnosed as an Aspie?

We're having a really rough year with Alexander too, after a very easy last 4-5 years or so, so you have my condolonces. It will settle.

Colleen said...

Everything you described sounded exactly like what Brian did in his first year of pre-k. It was so bad we had to pull him out of school. It was in Kindergarted that we got him assessed for ADD/ADHD/OCD. He has all three.

I'm thinking now we should have asked the doctor about Aspergers. :(

He is on medication for it and It has helped dramatically, but there are still little things that are popping up, like the not listening and repeatedly asking him to do things.

Goodluck with everything.

Renata said...

((hugs)) You're doing a great job. It will be easier once he is assessed & if he is aspergers there are plenty of ways to help him cope. One of the boys who goes through the same distance-ed school as we do has it & his mother is amazing with him.
Praying for you all
Renata XO